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November 2021

 

As a nonprofit we succeed through the generosity of our donors.
Make a recurring donation today, or plan your gift as part of our upcoming
Year End Fundraising Campaign

Giving Thanks

As Thanksgiving approaches I’d like to take a moment to share with you my gratitude for everyone who is a part of the JBRF family. JBRF is comprised of a special group of people who represent many different aspects of life with mental illness. We are a strong community of parents and patients who come together to break down the walls of isolation. JBRF’s  researchers are pioneering new breakthroughs on Fear of Harm and its treatments. Our volunteers enrich our outreach with warmth, comfort, and acceptance. JBRF’s network of professionals collaborate to bring recovery to those in need. Our staff strives tirelessly to make sure no one is without hope or feels alone on this journey. The JBRF family of donors make all of this possible, supporting a strong community that is making the world a better place. We can not thank you enough for walking this path with us.

While these past few years have been challenging, and the pandemic has brought its own difficulties, JBRF has pushed through. We have not only endured, but we have risen to the occasion and exceled in our ongoing quest to improve the lives of those living with Bipolar Disorder and Fear of Harm.

JBRF’s successes in 2021 position us for an even better 2022.

Show Your Gratitude

As you reflect on what you’re grateful for this holiday season, consider how you can improve lives by supporting JBRF. You can ensure that for years to come JBRF can continue to build on these successes.

Our 2021 Year End Fundraising Campaign kicks off on Giving Tuesday, November 30th. Please consider setting up a recurring contribution or plan your Year End gift today.

JBRF Successes in 2021

Research:

  • JBRF co-hosted a highly successful conference at the Harvard Radcliffe Institute where we brought together luminaries in the field of child psychiatry to discuss Fear of Harm’s potential to be included in the DSM.
  • Our sponsored research study at McClean Hospital (Harvard University Medical School) has continued through the pandemic and is yielding some incredibly exciting preliminary data.
  • JBRF was just awarded a grant to begin an exciting new research study focusing on non-invasive non-pharmacological interventions for treating bipolar and Fear of Harm.

Education, Outreach, and Advocacy:

  • Held more than 250 online support groups in 2021.
  • JBRF has directly worked with more than 65 families in 2021, and has met with hundreds more, who are learning to cope with their child’s bipolar and Fear of Harm disorders.
  • Hosted the webinar: Back to School Essentials, where parents learned the fundamentals of helping their kids with mood disorders be successful in school.
  • Developed hundreds of minutes of video education tools.
  • Launched the JBRF School Advocacy Program, which works directly with families to provide support during the IEP request, development, implementation, and educational testing processes.
  • Upcoming:
    • Webinar: Managing Behavioral Emergencies, November 16th, 7:30pm eastern time, parents and practitioners can get answers from an experienced paramedic about how to deescalate a crisis, how to stay safe, and when and how to call 911. Register Here
    • JBRF Community Briefing, December 15th, 7:30pm eastern time, join JBRF Research Director, Demitri Papolos, and Executive Director, Elizabeth Errico, who will report on JBRF’s successful conference at the Harvard Radcliffe Institute, discuss upcoming JBRF research projects and opportunities to participate, and answer questions in a live Q&A. Register Here

Collaboration:

  • JBRF was the invited speaker at the Rutgers University Center of Neurologic & Psychiatric Pharmacy webinar on childhood onset bipolar disorder and its treatments.
  • Participated as the featured guest for two webinars with the Youth Mental Health Project helping parents understand childhood onset bipolar disorder and the Fear of Harm diagnosis.
  • Executive Director, Elizabeth Errico, was one of three panelists on a live Podcast with the Bipolar Support Club, sharing the stage with the Executive Directors of the International Bi-Polar Foundation, and Bipolar UK.

Fundraising:

  • Ran a successful spring fundraising drive in honor of Children’s Mental Health Awareness Day Fundraiser #CelebrateJBRFKids (thank you to everyone who participated!).
  • Gratefully received a major gift which supports JBRF’s education, outreach, and advocacy programming.

 

Again, thank you for the role you’ve played in our shared successes.

Please consider how a gift to JBRF during our upcoming 2021 Year End Fundraising campaign will keep all of us on the path to hope.

Happy Thanksgiving, from our family to yours!

 

JBRF’s Year End Fundraising Campaign begins soon!

This year Giving Tuesday falls on Tuesday the 30th of November. We hope you’ll consider making a gift to JBRF on Giving Tuesday for our Year End Campaign.
All of us at JBRF are grateful for the generosity of our donors. Your gifts support cutting edge research, essential outreach & education, and tenacious advocacy. 
Increase the impact of your support and consider making your gift a recurring monthly contribution.

November’s Featured Product:

Fitbit Versa

We all know by now that in treating Fear of Harm tracking sleep is as important as keeping cool. Good quality sleep helps the body and brain get it’s thermoregulatory system balanced, which is key to long term stability. Many of our JBRF families get the essential sleep data they need from the Fitbit Versa. The Versa pairs with an app collects data on light sleep, deep sleep, REM sleep, and arousals/awakenings. It’s an essential part of Fear of Harm treatment and a great present for the holidays!

25 year old patient, Chloe, tells us how she uses her Fitbit Versa:

“I go over the data during my doctor’s appointments, and the data directly correlates to my moods throughout the week. More awakenings equals poorer mood during the day. I like to check my app in the morning when I wake up so that I know what to expect for the day mood-wise. It allows me to understand what I need to correct with my cooling techniques and helps to provide a sense of control where sometimes there doesn’t seem to be any.”

The Clinician’s Pathway Program (CPP) and its assessment tools, the CBQ and JJ, were developed by Dr. Demitri Papolos. By clicking the links below you will leave www.jbrf.org and be redirected to the research site that contains the CPP and the CBQ & JJ assessments. If you have any questions or concerns regarding these tools please direct them to Dr. Papolos’s system administrator at CPP@drpapolos.com

To Set Up a New CPP Account

To Access an Existing CPP Account

Scoring for assessments within the CPP is a fee-based service offered by the private practice of Demitri Papolos, M.D.; this service is independent of JBRF but may be accessed through the JBRF website. Dr. Papolos developed the CBQ & JJ measures and their automated scoring report with the support of JBRF. Questions and/or concerns with regard to the scored report should be addressed to CPP@drpapolos.com