More Information About Fear of Harm​

For more detailed information please visit our online course website.

Every Child is Unique

It goes without saying that all children are different from the git-go. Additionally, the degree of Fear of Harm that a child inherits can range from profoundly debilitating to much less so. While generalizations can be made about the behaviors and symptoms of FOH, as you read the information below, it is important to remember that they all exisit on a continuum. In fact, seeing the more subtle versions, the “FOH-lite” as we call it, is certainly harder than seeing the glaringly obvious one. That said, it is probably fair to say that all children affected by Fear of Harm face significant burdens and deserve the best understanding and support that we can provide to them.

Proposed Diagnostic Criteria for Fear Of Harm*

a phenotype of Bipolar Disorder

______________________________________________________________________________________________

Unspecified Bipolar: Thermoregulatory Sleep Dysregulation Disorder
AKA “Fear of Harm”
 
Criteria A–F are required for diagnosis and must be present most days for at least 6 months, without any symptom free periods that exceed 2 months in duration and cause functional impairment in one or more settings (e.g., significant behavioral problems at home but not necessarily in the school setting).

________________________________________________________________________________

A: Mood Disorder
Typically characterized by episodic and abrupt transitions in mood state accompanied by rapid alternations in levels of arousal, emotional excitability, sensory sensitivity, and motor activity.
  1. Meets DSM-5 criteria for any form of bipolar disorder (bipolar I, bipolar II, mixed episodes, major depression with short duration mania, major depression with insufficient criteria hypomania, hypomania without major depression, cyclothymia). Manic, hypomanic and mixed episodes are defined by DSM-5 symptom criteria but not by DSM-5 duration criteria.
B: Fear of Harm
Fear that physical harm will come to self or others; easily misperceives and experiences neutral stimuli such as tone of voice or facial expression as threatening; obsessive bedtime rituals; fear of the dark; fear of intruders; separation anxiety; contamination fears; hyper-vigilance.
Three (or more) of the following are required: 
  1. Obsessive fears that something awful may happen to self or significant others; 
  2. Obsessive fears that they will harm themselves or others;
  3. Reacts with excessive anxiety and fearfulness in novel situations or with strangers;
  4. Reacts with excessive anxiety in situations involving separation;
  5. Is self-conscious and feels easily humiliated in social situations; 
  6. Easily misjudges other people as threatening, intimidating or critical.
C: Thermoregulatory Disturbance
Experiences thermal discomfort such as feeling hot, or excessively sweating in neutral ambient temperature environments, as well as little or no discomfort during exposure to moderate or extreme cold, and alternates noticeably between being excessively hot in the evening and cold in the morning.
Two (or more) of the following are required:
  1. Feels excessively warm/hot at bedtime or overheats during the night;
  2. Feels cold in the morning having felt hot at bedtime;
  3. Feels excessively warm during day in neutral temperatures;
  4. Has moderate to extreme cold tolerance (able to go out into the cold without a jacket);
  5. Overheats or sweats profusely with exertion.
D: Sleep/Wake Disturbances
Most specifically characterized by highly disturbing nightmares or night terrors resulting in fear of going to sleep and auto-traumatization.
Two (or more) of the following are required: 
  1. Frequent night-terrors or nightmares – often containing images of gore and mutilation; 
  2. Fear of going to sleep because of disturbing dreams; 
  3. Hypnogogic hallucinations; 
  4. Excessively restless sleep.
E: Aggression 
Territorial and reactive aggression in response to limit setting and perceived threat or loss including aggressive fight-based speech or actions or self-directed aggression such as head banging, cutting or scratching self, suicidal thoughts or actions. 
Two (or more) of the following are required: 
  1. Excessively aggressive or controlling speech (critical, sarcastic, demanding, “bossy”); 
  2. Excessive anger and oppositional/aggressive responses to situations that elicit frustration; 
  3. Self-directed aggression (head-banging, skin-picking, cutting, suicidal ideations or actions); 
  4. Temper tantrums; 
  5. Often threatens or breaks objects, slams doors, smashes walls.
F: Symptoms Are Not Due to a General Medical Condition 
(e.g. hypothyroidism) Criteria may overlap with symptomatology from other DSM classifications.
G: A family history of recurrent mood disorder
And/or alcoholism, as well as other bipolar spectrum disorders, lends further support to the diagnosis. 
*Due to ongoing research the name of this disorder has evolved to reflect the most up to date information. The term “Fear of Harm” is used consistently throughout as a characteristic representation of the disorder.

What is Fear of Harm?

Like Bipolar Disorder, Thermoregulatory Fear of Harm Mood Disorder includes manic and depressive symptoms. However, these are just two of the characteristics of a much broader syndrome.

Fear of Harm (FOH) is a syndrome, or collection of behaviors and symptoms, which occur along with a specific trait called “fear of harm”. The trait, which is heritable, is one of obsessive fear that harm will come to self and/or others. 

Since FOH is a heritable condition, some children are much more affected by it than others. 

Children with FOH have an unusually high perception of threat. The threat can be real, imagined, or psychotic. 

Children with FOH typically react negatively when they feel threatened. This can be expressed as confrontation, defiance, blame, bullying, retaliatory threats, attacks, and even rage. Sometimes the child turns the aggression inward on him or herself. 

Children with FOH have extremely high levels of anxiety.

In addition to a Bipolar diagnosis, children with FOH typically have one or more co-morbid diagnoses. The most frequent are mania, major depression, separation anxiety disorder, generalized anxiety disorder, obsessive-compulsive disorder, oppositional defiant disorder, conduct disorder, and attention deficit disorder. 

While this condition can be very severe and life altering, when the symptoms are quiet, children with FOH are typically loving, insightful, bright children. They often feel terrible remorse that they cannot better control their reactions, their thoughts, and their lives. 

Other Characteristics

Daily escalation of energy: In general, children with FOH have a low level of energy in the morning, which escalates during the day. There is typically a difficult period around dinner time and they can reach a high level of energy prior to bedtime. 

Rapid shifts of mood: Each child is unique in terms of where they fall on the behavioral spectrum between depression and mania. But within their individual range children can shift rapidly and unpredictably between moods many times within each day. Shifts in or out of difficult moods occur either spontaneously or can be rapidly triggered by events, interactions, and/or expectations. Sometimes the shift is as sudden and dramatic as to be like a switch turned on or off. 

Manic Behavior: Along a continuum from mild to extreme, children can be giddy, goofy, and attention-demanding. They may be particularly enthusiastic for their usual activities, be expansive for new activities (often of a risky nature), and/or overestimate their own (or other’s value). They can speak rapidly, have racing thoughts, and/or be more argumentative or bossy than typical. They also can have a reduced need for sleep. 

Depressed behavior: Along a continuum from mild to extreme children can be filled with feelings of sadness, anxiety, self-loathing, and hopelessness. This can be accompanied by increased negative perceptions of self/events/people. They are likely to have low motivation, decreased ability to concentrate, and/or a loss of interest in things previously enjoyed; all of which lead to a feeling of intense boredom. The child might isolate, sleep excessively, speak more slowly, and have a decreased appetite. 

Irritable behavior: This is the chronic “on guard” state of vigilance from which the child is quick to react negatively. Any parent of a child with FOH can tell you that they walk on eggshells, careful to avoid the triggers. It is never far below the surface. In its most extreme form it escalates to rage. 

Poor frustration tolerance: It is particularly difficult for the child with FOH to delay gratification. This is easily seen with limit setting. The child wants something and wants it now and denial of the “need” is interpreted (to a greater or lesser degree) as a threat to survival. The frustration caused by waiting in line, being asked to do something that they find difficult, and of course all the challenging “nos” by a parent, causes a high degree of anxiety and reaction.

Poor self-esteem regulation: The child’s sense of self can range from unrealistically positive to overly pessimistic; largely in relation to the current state of mania or depression. In a manic mind-set the child can be arrogant, overly-optimistic, and believe him or herself to be all-knowing, superior to authority figures, and even possess super-powers. When the mood is depressed, they can be self-critical with intense feelings of shame, humiliation, worthlessness, and insecurity. 

Executive function deficits: Many children with FOH have difficulty with executive functions. These are the brain functions involved in planning, working memory, attention, problem solving, verbal reasoning, inhibition, mental flexibility, task switching, and the initiation/monitoring of actions. Problems with some of these functions are expressed as :

  • Extreme resistance or anger to unexpected changes of plans
  • Difficulty giving up an idea or desire, no matter how unrealistic it may be
  • Difficulty starting or completing school assingments or tasks around the house
  • Difficulty getting past small details in order to see the “big picture”
  • Impulsivity and over-reactivity
  • Restlessness or fidgetiness
  • Poor handwriting

The extra challenges created by these deficits contribute significantly and inextricably to the overall levels of anxiety and obstacles that the child lives with. 

Because of these executive function deficits many children might mistakenly receive a diagnosis of ADHD. While indeed the observed symptoms might be ADHD, there are subtle variations which would distinguish between the two conditions. 

The Clinician’s Pathway Program (CPP) and its assessment tools, the CBQ and JJ, were developed by Dr. Demitri Papolos. By clicking the links below you will leave www.jbrf.org and be redirected to the research site that contains the CPP and the CBQ & JJ assessments. If you have any questions or concerns regarding these tools please direct them to Dr. Papolos’s system administrator at CPP@drpapolos.com

To Set Up a New CPP Account

To Access an Existing CPP Account

Scoring for assessments within the CPP is a fee-based service offered by the private practice of Demitri Papolos, M.D.; this service is independent of JBRF but may be accessed through the JBRF website. Dr. Papolos developed the CBQ & JJ measures and their automated scoring report with the support of JBRF. Questions and/or concerns with regard to the scored report should be addressed to CPP@drpapolos.com

Before You Go - Make A Difference Make a Gift Today

JBRF’s groundbreaking research and essential education, outreach, & advocacy work brings hope to countless families with no where else to turn. 
Every gift helps make this life saving work possible.
Be a part of the solution today.