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About Research Studies
Better treatments for children with bipolar disorder will eventually
arise out of a greater understanding of the biological underpinnings
of the condition. This can only happen through advances in scientific
research, made by a committed group of clinical and basic science
investigators working together, and assisted by families whose children
are affected by the illness.
JBRF is focusing its effort on five major areas of inquiry that
include: Clinical Phenomenology, Neuropsychology, Neuroimaging,
Chronobiology, and Genetic Studies.
Participation in these studies enables families to contribute directly
to the research effort. The benefits of volunteering would include
an opportunity to be evaluated by an expert on the disorder. Specific
studies may provide additional information that may be useful to
the patient and his or her family.
Before putting your child in a study, JBRF suggests you ask questions
to help determine whether participation is in your child's best
interests. The National Institute of Mental Health suggests the
following Checklist of Questions:
Q: Why do you want my child in your study?
Q: What is the research about? How will this research help in
treating or understanding my child’s disorder?
Q: What do I need to do as a parent and how much time will this
take?
Q: How might this study help me, my child, relatives, or other
people with this disorder?
Q: What possible risks are there to my child or my relatives if
I take part?
Q: How will this be different from the care my child is getting
now, and do I have other options or choices?
Q: Could my child’s illness become worse during the study?
What will happen if it does?
Q: What will happen to my child at the end of the study?
Q: What should I do if I want to withdraw my child from the study?
Q: May I get back to you after I discuss this with my family/friend/case
manager/doctor?
For more information,
see the National Institute of Mental Health's guidelines, A
Participant's Guide to Mental Health Research.
I am interested in
participating in research studies and would like to find
out more about specific studies that are being conducted and
how I can enroll my child.
NEXT > Clinical Phenomenological
Study of Childhood-onset Bipolar Disorder
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